She doesnt have to go to India. I find a stream and follow it, the stream dries up, and Im left to look for moss on the sides of trees. assistant Sooki Raphael. Ive never seen a storm come up so fast. He leaned forward over the porch stairs. There was no more walking to a class in the dark of morningeverything was closedand so I asked her if she wanted to exercise with me. It had been no more than seven minutes start to finish. If there were too many people there, you managed to crop them out. Use this bar to access information about the steps in your cancer journey. Wed had a very good life. Sooki Raphael: These Precious Days RoseGallery Santa Monica | California | USA Apr 10,2021 - May 10,2021. ROSEGALLERY is presenting These Precious Days, a solo exhibition of paintings by Sooki Raphael, on view from 10 April until 10 May, 2021. I didnt see how it could hurt to ask. We found a diner down the street from where I would be speaking. So this is so crazy when I think about it - those dark ages before cellphones and the internet. Sooki was coming as a patient, and more than a little of the work was going to fall to him. My official badge-carrying title at the New York City Department of Healths Bureau of Animal Affairs was public-health sanitarian. The badge would have allowed me to inspect and close down pet stores if I wasnt too busy catching bats. Painting fell into the category of what she meant to get back to as soon as there was time, but there wasnt timethere was work, marriage, and children. I wouldnt. Email tilts toward the overly familiar. I did a Pilates DVD we never got around to. So what are the deadlines, days needed, etc? A month later, I still hadnt seen all the clothes she had brought with her, and I never saw the cold caps. Thats like the building blocks of my, of my life, Farley told SurvivorNet. Karl was sitting on the front porch and he called for me to come out. The assistant was a tiny woman wearing a fitted black-velvet evening coat embroidered with saucer-size peonies. She liked herself again. She made the time, stitching days together. And he said, oh, well, ask her if she wants to send me her files. I should have planned better, she said. Read More. I once invited the daughter of a woman who ran a lecture series in Pittsburgh to live with us when she found a job in Nashville and couldnt find an apartment. As in Patchetts first collection of essays,This Is the Story of a Happy Marriage, most of these pieces have been previously published in magazines (the New Yorker, Washington Post, Harpers) and are a blend of literature and memoir. Still, wasnt it worth mentioning? I flew back to New York for two more events, the first one in Connecticut. The greenroom crowd was then escorted to their seats, and we were ushered to the dark place behind the curtainTom Hanks, his assistant, and I. Later, she asked him if hed be willing to record the audiobook of her latest novel, The Dutch House. When he agreed, she began a protracted email exchange with Raphael to work out the details. While we pored over every detail of dinner (Sooki revealed herself to be a great cook), we didnt talk about her family. Just think, I would say to her on Wednesdays. I dont have any questions, I whispered in the darkness. But remembering all the wonderful ways your loved one enriched your life and moving on from there can be such a powerful way to move forward. Tell us. There were so many other people who would have done anything to be with herher mother and husband, her daughter and son and grandchildren, her sisters and all of her friends. He was watching the weather. As lockdown continues, the two women practice kundalini yoga and meditation twice a day. This wasnt about an inability to get good medical care; it was about not being able to find a clinical trial that both matched her cancer and could accept her immediately. A neighbor of the Patchett's described Sooki as a saint. Karl had gone back to work by this point, but he canceled his afternoon appointments to drive us to the hangar where my friends kept their plane. I took her to the J.M.W.Turner exhibition at the art museum. Sooki and I stood together in the kitchen, one of us washing the vegetables, the other one chopping, making it up as we went along. PATCHETT: It really is. Who is she? we asked. Id spent two hours on a stage talking to Tom Hanks, and now I wanted to talk to Sooki. Shes Now Memorialized in Author Ann Patchetts Latest Book; Moving Forward after the Loss of a Loved One to Cancer, Raphael first met Patchett backstage at an event with Hanks in 2017. He has me repeat my name, birth date and area of radiation each time before I enter the room. Well, Sooki said when we were finished. Absolutely. For Patchett its Snoopy: Snoopy taught me that I would be hurt and I would get over it. The main character I was certain of starts to drift, and someone Id barely noticed moves in to fill the space. Need to create a login? In Tan-Tan there was no electricity at night, either. Sooki didnt talk about her husband or her children or her friends or her employer; she talked about color. I had pictured her going through this alone, a conclusion I reached on account of a lack of information and a florid imagination. His wife, Rita Wilson, is a singer who writes with people in Nashville, where songwriting is a group activity. Up and down the street the lights clicked off; our house went dark. Marriage meant that he would hear out what on the surface may have appeared to be a spectacularly stupid idea. When I rely on my faulty memory, the pieces are free to move. She told me she had gained back the twenty pounds shed lost after the last chemo but she couldnt have weighed a hundred pounds now. My reading on this flight is a book called Radical Remission. She helps the poor like Dorothy Day.. They cant do the Stanford biopsy here? Add a Profile More Hide Episodes Title Year Update Role Assistant: Mr. Hanks Bridge of Spies (2015) Motion Picture Assistant: Tom Hanks Saving Mr. Banks (2013) Motion Picture Assistant: Mr. Hanks Cloud Atlas (2012) Motion Picture Assistant: Mr. Hanks Larry Crowne (2011) Motion Picture Assistant: Tom Hanks In a previous interview with SurvivorNet, Cuozzo tells us how she found comfort expressing herself through her work. I would be gone for the night, and once I got back my friend Emma Straub was coming to visit. Her kids were in school by then. Ill send photos from San Diego. I worried, and thought it was not my place to ask. She sent updateschapter eight now, chapter twelve. We love you, Sooki. The paintings came from a landscape of dreams, pattern on pattern, impossible colors leaning into one another. Sparky had crawled onto my chest and gone to sleep. Tom Hanks needs a favor? And if you decide you want to stay, well, you dont have to give that up either., Sooki the Tireless, Sooki the Indefatigable, looked as if she was about to split apart. I just cant stand the thought of being so disruptive to your and Karls (and Sparkys!) I hadnt meant this to be my career. Get as many nuns on this as possible. Was this what COVID-19 felt like? Miraculously, after a spate of vigorous exercise there would be enough white cells to slip her in just under the wire. He was in Nashville. We talked about what we were reading and what we wanted to accomplish that day. All day long Sooki emailed me pictures of her family with the subject line Where is our other sister? Its funny, but all this time I was sure it was exactly that. We had never spoken on the phone. Finally she went downstairs. She told me she thought shed put too much of her creative energy into her outfits over the years since she had stopped painting, though she might have said it to make me feel better. We would all proceed with our lives except that now we would be together. The title piece in the autobiographical essay collection These Precious Days by Ann Patchett is about her unexpected friendship with Tom Hanks's personal assistant, Sooki Raphael, who ended up living with Patchett and her husband in Nashville while enrolled in a medical trial for pancreatic cancer. PATCHETT: Well, thank you. A few more pages would send me off to sleep, so I went in search of a short story. Again it would appear this story had reached its conclusion. Thought-provoking commentary and opinion on politics, books and the arts. Sooki had brought her computer with her. Wednesdays chemo hit Sooki on Friday afternoon. A transformer must have blown up somewhere close by. Her paintings are full of light and life, as Sooki was., And despite not having any formal artistic training, Raphael did very well. I met Sooki Raphael for a few minutes in Washington, D.C., around three years ago, and maybe even more than that now. It was a shaggy dog of a story by a woman passionate about dogs, touching on a variety of subjects, including her friendship with Tom Hanks assistant Sooki Raphael; Raphaels treatment for cancer; the early days of the coronavirus pandemic; the art and craft of writing; and I kid you not psychedelic mushrooms. On this summer night in 2017, I picked up a collection called Uncommon Type, by Tom Hanks. But my sixty-four-year-old houseguest with recurrent pancreatic cancer asked for absolutely nothing but this. Did my character want to be a nun? One night after wed finished our yoga and meditation, we were lying on our mats, staring up at the ceiling. You cant go home, and we dont want you to go home.. Plans were made for Sooki to come to Nashville. With our hands on our shoulders we turned left and right, left and right, endlessly. I knew that she worried about her ninety-four-year-old mother in Rye Brook, New York, and read to her grandchildren in San Diego over Zoom. Was it like they said it would be, life-changing? She was painting. But everyone showed up, all four hundred of them packed in side by side, every last chair in the ballroom occupied. I didnt know what I was supposed to do, she told me later. Id written a childrens book and was about to go on tour. After a series of emails, Sooki comes to live with Ann and her husband . She had her surgery at Duke and survived. She was an expert in dealing with the medical system, after all. I have to know where Im going, otherwise I spend my days walking in circles. Sometimes I had to get right in front of her to hear what she was saying. She painted her granddaughter striding through a field of her own imagination, she painted herself wearing a mask, she painted me walking down our street with such vividness that I realized I had never seen the street before,Patchett wrote. All that was left was the wall around what had been their garden. UCLA had plans to start the same clinical trial that was up and running in Nashville, but not for another month or two, a unit of time that could not be lost to waiting. It was Memorial Day, after all. These Precious Days by Ann Patchett reviewed. She became interested in urban animals. I think about all the people who would want her to live with them. Surely there were sadder things, but none of them came to mind. She had brought a squeaky toy for Sparky. Simply put, Karl makes rain. It's clear this was hard to write about when you turned to actually try to capture Sooki in an essay. A tremendous explosion rocked the house, something far beyond thunder. Sooki Raphael leaves her canvas as colorful as she has led her life. I just keep moving forward. Finally she went downstairs. I reminded him that in choosing to work, he ran the risk of killing our houseguest. At the country club in Connecticut, the event organizers began to apologize as soon as we were through the door. The authoritative record of NPRs programming is the audio record. He got me a can of ginger ale and I tried to eat half a banana. Id be grateful if youd pray for her, I said, because while I was uncertain about prayer in general, I believed unequivocally in the power of Sister Nenas prayers. If asked if she could go any place, that place would always be home. Could I say that I would like to come see her? Maybe it had something to do with her job. We were ready. There is Tom Hanks's deceased assistant, Sooki Raphael, protagonist of the title essay that went viral a few months ago when it was published by Harper's, who had gone to Nashville for her . There arent a lot of boundaries. And youre going to freeze your head for eight hours every week? Wed been together for a matter of minutes. We did our best to pretend that what we were doing was normal. Im self-conscious about being in the way, especially if Im not at my best through chemo. Karl is not waiting on a thank-you note, I promise. I couldnt. Ours was an ephemeral connection common to the modern world, writes Patchett. He walked me through the publishing process: being thrilled by acceptance, ignoring reviews and then having the dream of bestsellerdom dashed What mattered was that you knew how to love the job.. More:Amazon releases its best books of 2021 list: 'An embarrassment of riches'. I woke up the dog and the three of us left in the darkness. We headed upstairs to lie side by side on our yoga mats, deciding to disregard my friends advice about staying on separate floors. There is no sense in putting that burden on yourself. She has to have children., It could happen. Direct flights to Los Angeles had been suspended, and even if shed wanted to fly to Dallas to wait and see whether the connecting flight would be canceled (because thats what happened now), her weekly blood draws underscored the fact that she scarcely had enough white cells to qualify for chemo, much less protect her from a pandemic while on a commercial flight. My death. Im sure these words cant adequately convey what was such a radiant message, but it stayed with me so strongly as I woke up during the night, and thats the best I can describe it. She was to stay in the trial, three Wednesdays on, one Wednesday off, until the regime was no longer effective or, to put it another way, until she died. And so when I looked up dressing, you know, it says, start with a loaf of day-old bread and make cubes. Sookis a pilot! Karl said. How do you fly from Nashville to New York in a single-engine plane for a two-hour visit? The paintings were bold, confident, at ease. How could I not have known? Could we talk about it sometime? Our newsletter vital information, hope, and healing, delivered weekly. ", (SOUNDBITE OF STATIK SELEKTAH SONG, "TIME"). I would love to stay with you for my first night or two in Nashvilleit would be wonderful to spend some time with you. There was my grandmother, my father. feb. 8, 2020: I have wanted to writeevery dayfor forever. I could see what they needed and what theyd given me. Three time cancer survivor, MariannaCuozzo, talks to SurvivorNet about how art helps her express herself. Its a wonderful thing to be able to go back to something thats a couple of years old, see the flaws in the fullness of time, and then have the chance to make corrections and polish it up or in some cases, throw the whole thing out and write a better version., A second theme that emerges is the central role women have played in her life, from her sister, mother and grandmother to the nuns who presided over her K-12 education; the largely female staff of her Nashville bookstore, Parnassus Books; and classmates in college and grad school, including the late poet Lucy Grealy, whom she befriended at the Iowa Writers Workshop and later memorialized in Truth and Beauty., 'Reclamation':A Black descendent of Thomas Jefferson brings her ancestors out of the shadows, Not to say she gives short shrift to men. Straub was coming as a patient, and thought it was not place! 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